Boy’s diagnosis inspires Terry

Terry is raising money for Ataxia UK because his friends grandson, Joshua Sullivan was diagnosed with Friedreich Ataxia
Terry is raising money for Ataxia UK because his friends grandson, Joshua Sullivan was diagnosed with Friedreich Ataxia
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The diagnosis of a six-year-old boy with a rare disease has inspired a Leighton man to climb

Mount Kilimanjaro to raise money for Ataxia UK.

Terry Barton, 56, of Rye Close, decided to embark on the challenge after the youngster was found to have Friedreich Ataxia – an inherited disease that causes nervous system damage and movement problems.

Pam Barton, Terry’s wife, said: “A close family friend’s grandson was diagnosed with Friedreich Ataxia, Joshua is only six and Terry really wanted to do something to help.

“Ataxia UK is great, they really support those affected so he decided to raise money for them and hopefully raise awareness of the condition.”

Terry goes to Tanzania on Boxing Day and will spend five days climbing up the mountain and two days climbing down.

Terry said: “It is an epic challenge for me, I have never done anything like it before, I am a bit apprehensive but really looking forward to it.

“It is for a great cause so I hope I raise lots of money for the charity.”

Ataxia UK aims to support everyone affected by the condition, fund research into developing safe, effective treatments and provide a range of services for them.

He hopes to raise £1,000. To donate, visit www.justgiving.com/terry-barton3